After a long break in writing this blog I began to wonder why am I writing this or who am I writing it for. I started writing this to tell some of my stories and to just feel like maybe there was someone out there that this could help. Maybe there was someone who just needed to know that they were not alone in their suffering and healing. I never intended this to be a forum on my trauma. What I really wanted was to tell my story in small chunks and talk about how I was moving through the process so that maybe someone else would not feel alone. I hope that in some small measure I have done that. Thanks for reading.
Since the last time I went to the hospital my anxiety level has increased. I was very blessed with caretakers who tried to make sure that through all of the procedures I felt safe. I knew that I was safe. Feeling safe when many of the practices in the hospital trigger traumatic memories of the torture that I endured is different.
For one of the procedures they needed to anesthetize me and put very deep under. I was terrified at the thought of not having any conscious control of my body. The doctors let me hold the mask over my face and I was in control for as much as I was able to be. As I was coming out of the anesthesia I could hear myself talking. Some of the things I said were trauma stories that I have told no one. That was very disconcerting.
Through the hospital stay I did my meditation everyday. It was sometimes for only five minutes. There were a few times that I was able to meditate for longer periods of time. It is very hard to focus on the breathing when you are in the middle of panic and anxiety so I often used guided meditation. When the meditation did not work I tried to listen to a piece of classical music that seems to work as though it is magic for my anxiety. I have this particular piece in three or four variations. I put them all onto a playlist and hit repeat. With ear buds in I was able to fall a sleep and rest for a few hours.
Flashbacks and dissociation happen very seldom these days. I have been working for a long time to process through a lot of the trauma. Years and Years of working through the trauma. And yet there still seems so much still to work through. I have found that the old adage that for every bad person there are hundreds of good people you can turn toward to help and to heal.
The anxiety seems to be harder to face and to work through. And it always scares me because my first thought is that my heart is misbehaving again. I do a body check of where is the pain. When I slow down long enough to actually put my hands over the painful spots it is never my heart. I can then stop and breathe and slow things down and put them into perspective. This means slowly reviewing what just happened in the last half hour. Sometimes there is a delay on the anxiety and the cause could have been anywhere from a few minutes to half an hour before. Finding the trigger and working forward to a better place helps.
The meditation seems to be the best course for me at this time. Though I now have to augment the meditation with medication to get me to a point that the meditation helps. Primarily I use the Calm.com app for meditation. It has soothing sounds as well as a timer or a peaceful voice that leads the meditation for a set length of time. Lately I have been taking advantage of the gratefulness.org resources. What ever format the meditation comes in I hope that it helps.
Now that I have finished with school it is time to figure out how I will pay back my student loans. I have been offered a job where I have been doing my internship. However, I am uncertain as to whether this will be a good fit. I have spent the last 11 1/2 months working somewhere while trying very hard to work within my limitations and not look like i have limitations. This has involved hiding in the bathroom and doing deep intentional breathing and simply smiling through the day regardless. It also involves trying to come down from a days worth of anxiety attacks that I have hidden deep down.
I finally lost it a few weeks ago and made some of my unhappiness known. There had been several ongoing things that simply made me feel not very valued. And they had never been addressed regardless of my hints. Apparently I needed to have a meltdown and spend my lunch hour crying in my car for anything to happen. And now with just 3 weeks of my internship left things are finally being addressed.
As I listened to people’s apologies I tried to follow my wise sister’s advice and look for sincerity. There was sincerity with many of those that have tried to make things right. I have yet to meet with one of those people who have inadvertently made it a hard internship. But I don’t think there will be a problem. They really want me to work there.
The real problem is that I have struggled for nearly a year and it gets harder and harder to get out of bed and go to the internship site and I am not sure this is where I can work. It is not because, or at least not only because, of the difficult time I have had. I have made it through because I have seen an end. There is a definitive time when this internship will end. I do not know if I can work somewhere full time where I cannot shave the corners to make my oddly shaped peg fit.
Making things fit my needs so that I can function in the world is something that I have become very good at. I have a safety list for things that I need to do that I struggle with. And protocols that make it possible for me to feel safe. Since feeling safe is something I did not have until as an adult I found ways to make it happen I am very aware of when I do not feel safe. For example: My tire went flat. I changed it and we got it fixed. However now I feel unsafe driving. I check my tires every time I get in the car or get out. At some point I will regain that safe feeling. It takes time.
Generally I learn from things that happen. I overreact to things and I see by the expression of those around me or from my own processing that what I did was an overreaction. I then learn how to react appropriately. It is always a learning experience. New experiences throw me for a loop. I know that this is normal. But I do not think it is normal to break out in a rash and not breathe as well as having your ulcer flair up when you have to fill out new forms. Once I do it however I know how to do it and the reaction is not the same.
What I am faced with now is how do I get my needs met, shave the hole to fit my peg and fit the needs of an employer? I am still looking for opportunities and also looking for ways to create opportunities. I just hope that through all this I can find a way to not hide my limitations but to make my experience something of value. Because I know that I have a lot to offer that is of value. I simply need to find a way to make a square peg fit in a round hole.
Lately I have been overwhelmed by stress and changes in the things around me. By the end of the day I am filled with extreme sensory overload. It sometimes reaches a point that the only thing that I can do is go to bed and hide under my covers for half an hour.
After one particularly hard day at my internship site I called home and told my family I would be home a few hours later than usual. I needed to decompress from everything that had happened that day. I went to a restaurant that my husband and I go to regularly. I sat at the table where we usually sit. I ordered something that I have had many times in the past. And I pulled out my kindle and started to read a book that I have read before. There was no new input. Everything was familiar. After about an hour I felt calm and a lot more peaceful. I was able to process the stimulus of the day.
I had gone to a place that was constant. There was nothing new to interfere with the processing of the day. Later I thought about how I was feeling and how I had decompressed in such a short time. And how it had been such a thoroughly relaxing thing. The thought that came to me was that I was processing in a place where there was continuity. A place where nothing new existed and nothing was competing for my attention. There was no new input.
It felt like a moment where a light bulb is turned on and you realize that the switch for the light had been there the whole time. And I was just noticing it. Having a space that is continuously the same and never changing or at least only subtly changing can be extremely healing for an over stimulated mind. I had heard of people having a meditation space where they would always go and thought that it was a very cool. I never felt that it was something that would benefit me.
Creating and having a space of continuity has now become very important in my self-care plan. It is part of the “what pleasant activity did you do?” section of my plan. Doing this helps me to work with my difficulty in dealing with change in general. I am finding a place in the storm of my life that is always calm. A place that is not overstimulating and whispers to me to come in and find peace.
I hope everyone can find that place and visit it often when things in life become overwhelming.
Once upon a time there was a dark cloud. He had no discernible from. He simply was. He could wrap himself around a person and fill them with fear so powerful that everything would quiet in their mind except the need to escape. This was his nature.
One day he saw a girl. She was a little afraid, a little bruised and a little sad. And he fell in love. He followed her everywhere. Sometimes wrapping her in his cloud until she could not think for the fear and then slowly he would release her and she would breathe. When she was in a situation that was unknown or around too many people he would embrace her and she would leave that area as best she could. He loved her but he was slowly taking away her life.
After many years the girl, now a woman, met a friend. This friend loved her and walked beside her. He could see the dark cloud and he could see how afraid she would become at times. But there was nothing that he could do. He could only walk through life with her, hold her hand and love her. While she became more and more afraid of the world outside her door. Though he shared her with the friend Panic, for that was who he was, liked that she stayed close to him always.
Time passed and the woman found that she did not like having to stay at home. She resented Panic. She resented the loss of her life. So she made a plan. If she brought someone out with her to where she needed to go they could help her find her way out of Panic’s embrace. They could see her begin to be afraid and help her to be somewhere safe. The woman had found a way to be free. She began to learn how to gain control of the fear and how to quiet her mind.
The cloud became sad when he realized that when he embraced her she would slow her breathing and quiet her mind. He found that if she were still for a moment she could say things to her mind that helped her find a peaceful place. A place where she could be calm and not be afraid.
Over the years she learned how to keep herself safe. She learned to know where the cloud liked to be. And to prepare herself for meeting him. Slowly she reclaimed her life. Though Panic still embraces her she has learned how to stay safe. Most importantly she has learned to trust herself to know the difference between real danger and Panic.
Safety is something that should never be discounted. Feeling safe has been a very integral part of healing. When I am unable to do something because I am afraid or the situation triggers panic for me I stop and try to see how to change it. I have learned that I am a triangle peg living in a round hole world. I am way beyond the average square peg. I have found that the easiest way for me to get through things is that whenever possible to take out the hack saw and make the hole fit me.
This does not mean I go around insisting that the world fit me and everyone has to accommodate me. I try to fix it the best I can with out terribly inconveniencing anyone. I look at the picture and see what I can change. For example: I have a cell phone that I use just for me. I don’t give out the number but I use it to call home or so home can reach me. That way if I start to panic I can call home and hear a familiar voice that helps to soothe the fear. It also helps with my eternal fear of the car breaking down. This fear alone has kept me from driving very far. But that is another story.
I have also instituted the program of “safety buddy” into my life. I think that right along with service animals there should be a safety buddy program available to everyone. A safety buddy is just a friend that agrees to go with me and be there for moral support. Because I am afraid to do something.And that fear goes beyond the basic feeling of being just afraid. This is the type that precedes the big panic attacks.
For instance, I cannot be in crowds for very long before my head starts to feel like a hive of bees has been released in it, my heart rate starts to climb and I have trouble seeing. Thus if I have to go somewhere where there will be lots of people I take a safety buddy. They have the responsibility of getting me out if I cannot. Or just talking me through it if I stat to panic. I have been doing a lot more without safety buddies over the past few years. But their kindness in accompanying me has not gone unnoticed. Everyone needs a safety buddy.
So if you know someone that could use a safety buddy or you need a safety buddy there is no shame in reaching out. I have found that there has always been a hand to grasp mine. Even from unexpected places. And sometimes being a safety buddy has been, for me, a growing and rewarding experience.
Safety should never be overrated.